Grand Sensory Survey Article Published in American Journal of Occupational Therapy

For the last three years, we have been working with the University of Colorado and the STAR SPD Institute to build on the findings of our Grand Sensory Survey. We are very pleased to announce that the first (we hope!) journal article on this topic, summarising our findings, has been published by the American Journal of Occupational Therapy in their Autism Acceptance month special issue.

We would like to express our deepest thanks to the academics and researchers who contributed (and wrote most of it).

To see the AJOT issue table of contents in full (paid subscription to actually read it) here.

Citizens can access the article in full on the Citizens’ Dashboard.

If you would like to cite the article, please use:

Spielmann, V., Burke, H. K., McCulloch, S., Mason, A., & Lane, S. J. (2023). Linking sensory integration and processing with mental health in autism: A retrospective review of survey data. American Journal of Occupational Therapy, 77, 7702185080. https://doi.org/10.5014/ajot.2023.050127

We are still working on the follow-up survey (GSS 2.0) but are nearly finished and will hopefully announce something this year.

Sensory Health and Autism Summit, 14th June 2023

Founder Sarah McCulloch will be speaking at the Sensory Health and Autism Summit on the 14th June, organised by StarSPD.
Tickets are now $159 through to June 16th and recordings will continue to be available as Continuing Professional Development packages on the StarSPD website.
Our talk will be building on our Grand Sensory Survey research (published in 2019 on AutisticEmpire.com, written up and published in April 2023 in the American Journal of Occupational Therapy) and will raise new areas of sensory differences of autistic people that are underresearched and rarely considered in clinical practice.
Grand Sensory Survey 2.0 is in its final design and will be out soon!
May be an image of 13 people and text that says 'Sensory Health and Autism Unpacking Sensory Differences JUNE 14-16 2023 8AM-12PM MT Advance Ticket ENDS $129 Today REGISTER NOW bit.ly/starvsa2023'

Audible Autism – Episode 32 – Autism and the Police

Hello Listeners, this episode of Audible Autism will involve a discussion on a more serious topic than previous episodes and that issue being how to deal with or interact with the Police

This episode guest Chris Hilliard discusses the lack of training the police tend to have, some of the ways in which they judge who they might suspect on being offenders using systems that the general public might not be aware of but also Chris also goes into detail with his own incident with the police during the 2010 Student protests which had to be taken to trial.

This episode was one of a few that was meant to come out last season before that was abruptly ended but considering the current conversation regarding policing and the role of Police which as a Podcast based in the UK also involves the death of Chris Kaba we feel that the things discussed within this episode are still relevant and ontop of that will be addressing the issue from a British perspective.

We hope all of you who tune in find this episode informative, thank you 

Audible Autism – Episode 31 – Performing Arts with Annabell and Fay

On the latest episode of Audible Autism, Odai and Luke interview performers(stand up and poetry respectively) artists and all around good people Annabell and Fay.

Within this episode you get to hear a conversation that touches on not just being Autistic in their respective fields but also the perception on the number of performers with disabilities out there, the contradictions within the scene, inspirations and….spreadsheets.

As always we hope you enjoy this episode and find it informative

Audible Autism – Episode 30 Autism and Social Media with Ian Lane

After much delay, blood, sweat and a dying laptop we now have the first episode of the new season of Audible Autism all set and ready to go. Our first episode is an interview with polymath Ian Lane about the highs and lows of navigating social media as an Autistic person.

Topics covered include :

  • Whether the internet has gotten bigger or smaller over time
  • Friendships, how they’re made and how they can be broken
  • and how “discourse” manages to change and yet stay the same

We think you’ll find this a very enlightening and entertaining episode

If you would like to be on an episode of Audible Autism, please fill out our form here, and we’d love to chat with you.

Peer Clinic – Opening 2022

Many of the citizens of the Autistic Empire receive requests for their time with people who want to speak to an autistic adult. They may be a parent, professional, or newly identified autistic person who just want to consult an autistic person to gain their perspective. 

In recent years, these requests have increased significantly in number. While this is a very positive thing as awareness of autistic lives and advocacy increases, this is putting a heavy demand on our citizens to give their time and labour for free. 

We are therefore offering a paid peer clinic for anyone who would like to speak to an autistic adult on any topic. You can read the biographies, availability and fees of our current peers below. We come from a range of backgrounds, experiences and professions. You may request a specific peer you would like to speak to, or email us with what you want to talk about and we will match you with someone appropriate.

 

Learn more about our clinic and our peers here.

Aphantasia Factsheet

You can download the content of this factsheet as a PDF here.

‘’Aphantasia is the inability to visualize mental imagery. Otherwise known as blind imagination.’’

‘’If you are like the estimated 1—3% of the population with Aphantasia, you may be unable to visualize any type of image in your head.’’

What Is Aphantasia?

Aphantasia is the inability to visualize mental images, that is, not being able to picture something in one’s mind. Many people with Aphantasia are also unable to recall sounds, smells, or sensations of touch. Some also report prosopagnosia, the inability to recognize faces. (Wiki)

Aphantasia was first named in 2015 by Prof Adam Zeman, a cognitive and behavioural neurologist at the University of Exeter. Zeman first became aware of the phenomenon when he was referred to a patient who had ‘lost’ his visual imagery after a heart operation.

Aphantasia was first described by Sir Francis Galton in 1880 but remained largely neglected until, Dr. Adam Zeman began his work in the early 2000s and coined the name from the Greek word “phantasia,” which means “imagination.

There is further research into this contention as it is largely unstudied at this time and is poorly understood. There have been long debates by researchers into the mind’s ability to visualize and how it relates to the brain’s memory functionality. Currently researchers have no indications that the impact of Aphantasia is negatively affecting memory. As many people are born with Aphantasia they do not realise that their experience of thinking about an item or person is different to how others experience. This means that there are people around the world that are living with Aphantasia without knowing.

When asked to visualise a sunset, for example, people with aphantasia are unable to conjure any kind of image to mind and will often have assumed that terms like the ‘mind’s eye’ are purely metaphorical. At the other end of the spectrum, people with hyperphantasia describe imagery so vivid that they can find it difficult to be sure whether an image was perceived or imagined

 

Key Facts

 

  • Some people are born with Aphantasia, whereas others can acquire it through traumatic incidents such as brain injury or periods of psychosis

  • Spatial imagery (e.g., the ability to recognise the distance between two places or mentally rotate and object) are unaffected by Aphantasia

  • There is some evidence to suggest autistic people are far more likely to have Aphantasia

  • Many Aphants also report having Severely Deficient Autobiographical Memory (SDAM), and most Aphants report reduced ability to remember the past or project into the future

  • Aphants appear more likely to have prosopagnosia (face blindness), a condition characterised by a reduced ability to recognise faces

  • Some people with Aphantasia dream visually, whereas some others report more having a sense of what is happening in the dream

  • Many do not discover that their experience is any different from that of others until their late teens or early 20s. It might be while reminiscing about the past and realizing they are having a different experience with memory than their friends or family. It is not that they do not notice that they do not visualize. They just do not know that other people do.

Signs

  • Unable to conjure a clear image of a family member,
  • Difficulty pictures their characteristic movements and gestures?
  • Unable to remember or visualize
  • No image at all, only “know” they are thinking of the object

 

If you feel like you might have aphantasia there is a VVIQ test you can do here on the Aphantasia website.

 

Reference Guide

NYTIMES

Aphantasia.com

Very Well Minded

Science Focus

Technology Networks

Blogs. Exeter

Scientific Research and Papers

A cognitive profile of multi-sensory imagery, memory and dreaming in aphantasia

(A)Aphantasia and severely deficient autobiographical memory: Scientific and personal perspectives

The blind mind: No sensory visual imagery in aphantasia

Aphantasia, imagination and dreaming

Reflections on aphantasia

Refusing to imagine? On the possibility of psychogenic aphantasia. A commentary on Zeman et al. (2015)

Ted Rogers at Autistic Pride 2021

At Autistic Pride 2021, AE Citizen Ted Rogers showcased an experimental, and experiential, film he has produced exploring the sensory aspects of autism, and spoke about his autistic journey. We have finally cut and uploaded this, so you can check it out!
Ted runs a monthly radio show for autistic people called Autismik, which you can listen to past episodes of on Margate Radio here: https://margateradio.co.uk/ted-rogers

Audible Autism – Episode 29 – Kate Mcnulty interview

Its that time again where Sarah and Odai interview a new guest in this case Kate Mcnulty. Kate is a therapist on the Austistic spectrum and this leads to some interesting talking points including Kate’s own journey through understanding herself, common complaints in a neurotypical/neurodivergent relationship aswell as her book on these subjects and more.

We hope you find this a gratifying and entertaining episode as always 

Audible Autism – Episode 28 – Sarah interviews Joel

It’s what you’ve all been waiting patiently for on bated breath and with barely contained excitement…the new season of Audible Autism.

Kicking off this season with a solo interview from Sarah with Joel Herman about his life, being an Autistic stand-up comic and all that entails.

We hope you enjoy this episode and the rest of the upcoming new season.

It feels good to be back!

If you would like to be on an episode of Audible Autism, please fill out our form here, and we’d love to chat with you.

For those of you interested in Joel’s work, please make sure to check out is social media pages below.